Polymyalgia Treatment

 

Symptoms

Polymyalgia rheumatica is a rare rheumatic disease that affects the connective tissues of the body in people over fifty. The muscles in the neck, shoulders, hip and lower back are most vulnerable and become stiff and achy, especially when first getting up in the morning. The muscles also become weak and fatigued. Overuse of the muscles after intense exercise intensifies the pain and stiffness. If severe, additional signs of fever, weight loss and anemia can develop. Overall energy is noticeably depleted. Usually, symptoms begin suddenly and disappear over a period of months. In some cases, symptoms continue for a few years.

Polymyalgia Treatment Causes

As its name suggests, this disease has many similarities with other rheumatic illnesses, such as arthritis, which also causes stiffness, soreness and overall fatigue. The cause of polymyalgia rheumatica is linked to an inflammation of the blood vessels supplying these muscles. A mineral imbalance will also trigger polymyalgic rheumatica in some cases.

Polymyalgia Treatment Nutrition

Eliminate bran, coffee and tea from your diet, as these interfere with mineral absorption. Vegetable oils such as flax seed oil and walnut oil reduce the inflammation which causes muscle stiffness. Fish such as trout, cod, halibut, mackerel, salmon, shark and herring also contain oils effective in reducing inflammation. Fish is a good source of quality protein to help stimulate the body's natural production of cortisone. Prescription produced cortisone relieves polymyalgia rheumatica symptoms, but with serious side-effects. Natural cortisone, however, produces no side-effects.

Reduce or eliminate the consumption of refined carbohydrates, such as white flour and sugar, which deplete mineral levels. Celery is an effective treatment. It stimulates the kidneys to expel toxins and uric acid. Juice fasting detoxifies the body and helps determine food allergies causing problems.

Polymyalgia Treatment Nutritional Supplements

The essential fatty acids are most important to provide the body with nutrients to build anti-inflammatory prostaglandins. Evening primrose oil and a combination of oils rich in essential fatty acids should be added to the diet. Vitamin C with bioflavonoids is also useful to combat inflammation and promote tissue healing, as well as to strengthen the blood vessels. Vitamin E improves circulation and flexibility, and is necessary for muscle strength. This vitamin is most helpful in combating rheumatism in the long term. Royal jelly and bee pollen are bee products which help to increase energy and stamina.

Daily dosages:

Most Important

Evening primrose oil, two 500 mg capsules three times daily or a combination oil, 1 tsp. daily

Vitamin C, with bioflavonoids, 1,000 mg

Vitamin E, with mixed tocopherols, 400 IU

Helpful

Royal jelly, 3 tsp.

Bee pollen, 3 tsp.

Polymyalgia Treatment Herbal Remedies

Like other rheumatic diseases, a detoxification program and stimulation of the metabolism are the first steps to improve the condition.

Devil's claw root is a natural anti-inflammatory used to treat rheumatic disorders. It can help reduce pain and inflammation associated with polymyalgia. Take 3 extract tablets, or simmer 1 tsp. of devil's claw root in 1 cup of water for fifteen minutes. Drink three times daily for four weeks. Rest for two weeks, then repeat.

Apply crushed comfrey root pulp to the affected parts and the pain will gradually subside. Once weekly, take a twenty-minute comfrey bath. Soak 1 lb. of finely chopped comfrey root in 5 qt. of cold water for twelve hours. Warm up this liquid; strain and add to bath water. The patient's heart area should remain out of the water. Do not dry the body after the bath, but put on a thick cotton-terry robe and sweat for one hour in bed.

Passion flower, hops and valerian have sedative and muscle-relaxant properties. Prepare a herbal tea with one or all of these herbs, adding 1 tsp. of herbs to 1 cup of boiling water. Drink before bedtime.

St. John's wort is a natural antidepressant. It has properties that benefit adrenal gland hormones and help reduce nerve pain. Take
1 capsule of oil three times a day or rub the oil on the painful areas to relieve pain and encourage sleep.

To relieve rheumatic symptoms, pour 1 cup of boiling water over 1 tsp. of dry borage leaves and blossoms; steep for ten minutes; strain and drink every morning.

For one week, drink 2 tbsp. of birch juice with some water three times daily, fifteen minutes before large meals. Then, for one week, take
2 tbsp. of dandelion juice three times daily. Finally, for one week drink 2 tbsp. of stinging nettle juice, three times daily.

Take herbal baths with a combination of juniper, rosemary, fern, mustard or hayseed.

Polymyalgia Treatment Homeopathy

Consult an experienced homeopath for constitutional treatment, which may include diet and lifestyle changes, allergy testing and bowel cleansing routines.

Polymyalgia Treatment Tissue Salts

Take 4 tablets under the tongue every hour or two for initial pain, then four times daily for two weeks.

Ferr phos is excellent for muscle soreness and stiffness that is worse at night and with motion, especially in the initial stages of inflammation.

Nat phos is useful in many cases of rheumatism associated with an overacid condition, often indicated by sour-smelling sweat or an acid taste in the mouth.

Kali sulph is recommended when the pains shift and wander, get worse in hot, stuffy atmospheres and in the evening, and feel better in the cool, open air.

Use Calc phos for cold, numb muscles that are worse at night and in cold, wet weather, but are relieved by rest and warmth.

Mag phos is excellent for sharp, stabbing pains, relieved by warmth and aggravated by cold. Muscle contractions and associated twitching are also helped by this remedy.

Polymyalgia Treatment External/Physical Therapies

Stress reduction, mild aerobic exercises, diet and supplements play an important part in recovery from this condition.

Deep breathing is the basis of all stress-reduction techniques. Deep, relaxed inhalations, expanding the entire chest cavity and using the full diaphragm muscle, are vital to deep breathing.

Detoxification of muscle and body tissue by gentle muscle and lymphatic massage is beneficial.

Heat in various forms, applied to the painful areas, helps to increase blood supply and relax muscles. For undefined rheumatic pains, heat coarse salt in a frying pan without oil; put it in a cotton cloth and place it warm on the painful area.

It is important to keep warm. Wear natural-fiber socks, comfortable loose shoes and avoid drafts or chilling.

Some people find it helpful to wear a copper bracelet. The copper can penetrate the skin and have an anti-inflammatory effect because copper stimulates the liver to manufacture superoxide dismutase (SOD), a powerful antioxidant.

Polymyalgia Treatment Other Suggestions

Blood, urine and hair mineral analyses might be necessary to determine toxic levels of heavy metals in the body. (For more information, see Appendix 1.)

Chelation therapy to remove toxic metals can also bring relief of symptoms (see Appendix 1).

A number of studies demonstrate a relationship between food allergies and connective tissue diseases. Intestinal tract parasitic or fungal (candida) infections need to be investigated and treated before starting on a food allergy elimination program. (For more information, see Appendix 1.)

Polymyalgia Treatment Available Brand Name Products

Nutritional Supplements

Ascorbate/Non-acidic Vitamin C (Ester-C)

Flax Oil (Flora)

Flax-O-Mega 1000 mg (Flora)

Udo's Choice: Ultimate Oil Blend (Flora)

Udo's Choice: Ultimate Oil Blend Capsules (Flora)

Calcium and Magnesium Citrate

(Natural Factors)

E 400 IU Mixed Tocopherol 100% Natural (Natural Factors)

Flax Seed Oil 1000mg (Natural Factors)

Flax Seed Oil Liquid (Natural Factors)

Ultra Prim Evening Primrose Oil

(Natural Factors)

Vitamin A (Natural Factors)

Wild Salmon Oil (Natural Factors)

Other Nutritional Supplements

Peace River Bee Pollen (Natural Factors)

Pollen Plus Energy (Natural Factors)

Royal Jelly (Natural Factors)

Herbal Remedies

Greens+ (Greens+)

Devil's Claw Extract (Natural Factors)

St. John's Wort Extract (Natural Factors)

Celery Seed (Nature's Herbs)

Devil's Claw Extract (Nature's Herbs)

St. John's-Power (Nature's Herbs)



Comments

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Betty Says:
Sep 12, 2009 @ 5:37 am
 
 
Hello Gerry
Couldnt help but laugh at some of your message...yes, some guru Specialists are twits...makes me wonder how some of them got to where they are. I havnt been too bad thanks Gerry and hope you have been better. Still taking PRednisone...8mg daily split into 2 doses. Was on 7 total daily but had to increase it again. This thing will take forever to get rid of the way its going. Still havnt come across anything easier to help get rid of it. Had my back operated on in Feb this year and its been a long hard road. Had a few setbacks but seems to be heading in the right direction again. See an exercise physiologist on Tues next week to get exercises to help lose weight around the middle and strengthen my back. Been go to physio and he has been a godsend as far as the back is concerned. I actually lost the link to this site so Im so glad you sent me a message Gerry. Im back in touch again...lol. Must fly, you take care and we will have to message more often...often think of you too...
 
 
gerry Says:
Sep 11, 2009 @ 6:49 am
 
 
Dear Betty

How are you? long time since we have been in touch about five months, but often think of you, hope your somewhat better than you were.

With regards to myself, l saw a specialist whom said l had bilaterial frozen shoulders, which means the two shoulders were frozen, well after four visits @ £150+ a visit l realized he was a twat, and wouldnt know a frozen shoulder of lamb unless it fell on him, luckily l never agreed to the treatment of a course of injections of steriods, but found a new diet supplement which has helped, the specialist was in Harley Street London, just goes to show even Harley Street specialists can be twats, well hope to hear from you when you get chance to reply, meanwhile you take care and l miss our little chats, regards gerry
 
 
Betty Says:
Apr 20, 2009 @ 1:02 am
 
 
I think stress plays a part Inna...cheers, Betty
 
 
Inna Says:
Apr 10, 2009 @ 5:48 pm
 
 
Hello everybody!
What do you think about stress and PMR? Can stress aggravate PMR?
I recently was in the highly stressful situation and after that was very sick for a while (fatigue, pain, depression). It took 2 weeks to get better. Any thoughts?
Thank you. Inna
 
 
Betty Says:
Mar 03, 2009 @ 6:08 pm
 
 
Thanks a lot for that Sue..I will take note in future and see what happens. I am still stuck on 10mg of Prednisone a day...body doesnt want any less apparently...Cheers, Betty
 
 
Inna Says:
Mar 02, 2009 @ 8:10 pm
 
 
Hi everybody!

Is it OK for me to go to a chiropractor? I have PMR for 9 month. I take 3 mg of Prednisone but still have pains in my back, hips, and shoulders. Can chiropractor help me?
Thank you.
 
 
Sue Says:
Feb 20, 2009 @ 6:05 am
 
 
Hi Betty and Gerry, It is a long time since i posted anything on here. I am now on 5mg pred daily which is not too bad. I don't know whether you can remember me telling you that i thought wheat was aggravating the pmr. Well i had been off the tablets for quite a while when all the symptoms started again and of course it showed in my blood.
And what had i started to eat. WHEAT. I have now stopped and again have started to feel ok. Another lady Sandra has found the same thing so please try it if you have not. Take care all. Sue
 
 
Betty Says:
Feb 03, 2009 @ 4:15 pm
 
 
Hello Gerry...Sorry to hear you were both laid up over Christmas..hopefully you are both fine now. Our Christmas was quiet but great....hope 2009 is much better for you than 2008 too. Things arent too bad here...down to 10 mg Pred daily and going to 9 at the end of the week...not real confident but we will see. Have my back operation in 3 wks...pinched sciatica nerve...unknown waters for me this one...lol. Its been disgustingly hot here...cant wait for winter. Take care & talk soon..hugz, Betty
 
 
gerry Says:
Jan 31, 2009 @ 3:43 am
 
 
Hi Betty
Hope you had a good Christmas and a happy New Year to you, hope 2009 is a good year for you, and your health, and that everything improves for you.
My Christmas was the worst ever, a horrid cough, and both me and my husband were laid up over Christmas and New Year, which came and went, we never even got a Christmas Dinner, both too rough, still its nearly Feb now and we are both okay, and we are having a turkey dinner sunday, then some good old Christmas pudding and cream, to make up for missing out.
The weatherman said snow is expected, and if he is as accurate as usual then its sun all the way.
Speak soon okay, cheers gerry
 
 
TJ Says:
Dec 10, 2008 @ 2:05 am
 
 
I'm going on 2yrs with this I did have about, 3months w/o pain and when went off, pednisone relapsed, seem to be worst now, I did go down to 8gr but had to go back up to 10, the pain at 8 was to much, I did try to hang in there but had more bad days than good, to be honest 10 isn't much better but the cold weather I'm sure isn't helping, and want to get off pednison this week has been real bad, I've always had trouble with pain with my breathing not real bad but the last couple weeks I've been getting so many twinges in my insides. does this sound common,, it's hard to explain and I get worried doc doesn't seem alarmed seems to think part of pmr or side effects, any comments welcome
 
 
Betty Says:
Nov 18, 2008 @ 1:04 pm
 
 
Hello Inna....youre more than welcome for any help. I have a flu needle each year. I actually had the flu early this year and never knew I had it apart from the cough. No aches or pains no loss of energy etc...it was weird. Flu is more or less full body inflammation and the prednisone took care of that beautifully. I couldnt believe it. No temperature either...just the loose cough. I was actually digging in the garden and started the cough at lunch time. I didnt finish in the garden until dark and that spoke volumes for Prednisone for me..lol.
I unknowingly spoke to a friend in hospital for over an hour and he had shingles and they say to stay away from anyone with shingles...I never had any after effects.
cheers
Betty
 
 
Betty Says:
Nov 18, 2008 @ 1:01 pm
 
 
Hello Gerry
That information sounds great and thank you for that. I will keep that in mind as its very interesting. We are staying home for Christmas Gerry with a few family members. It will be as hot as Hades no doubt so we are going to have Christmas Dinner at night in the air conditioning. A friend of ours is a nurse and is working that Day so we are having her around for Dinner that night.
Cheers
Betty
 
 
Inna Says:
Nov 17, 2008 @ 8:03 pm
 
 
Hello everybody! Thank you Betty for your help! It means a lot to me! I am the only person I know with PMR. People
have no idea what it is. I have a new concern: flu season. There is a worning on my Prednison box :stay away from infected peple. My granddaughter was just diagnosed with mano. Should I be afraid? And what about going shopping in a flu season? Is it OK to get a flu shot?
Thank you.
 
 
gerry Says:
Nov 15, 2008 @ 6:43 am
 
 
Hi Betty,

Have some news for you, a vet l know was talking to me about prednisone, and she tells me that if you take it at the same time as the body is making it there are fewer side effects, dogs make it in the daytime, but cats and humans make it at night time, therefore if you take it at night you will have fewer side effects, she really is a first class vet, but also studies human medicine, her mother had the same problem with side effects, but it is sorted now, thought this piece of advice would be helpful to you, and all the others that are on prednisone.
Glad you are good at the moment, especially with Christmas round the corner, any plans?? lets all just live for the moment and go for it, if l can get my rear out of the chair that is!! cheers all gerry
 
 
Betty Seeney Says:
Nov 12, 2008 @ 1:33 pm
 
 
Hello Inna...no sense going off Prednisone if its working....all symptoms will be back. The plan...same dose for 6 weeks...if no symptoms...reduce it by 1mg for 4 weeks...in other words if you were on 12mg daily before reduction, reduced dose is 11 mg daily. If all goes well for 4 weeks...reduce another 1mg down to 10mg daily for 4 weeks etc. etc. Once the dose gets down to about 5 mg daily, reduce by half a mg. so you are on 4 1/2 mg daily for 4 weeks. I have no symptoms while on Pred. unless the dose is not high enough...then its back in the hip area so I just have to go up 1mg to where I was before symptoms returned. The whole idea is to be symptom free or its a waste of time and a waste of prednisone. I cannot get under 12mg a day at present....6mg morning 6mg. night. Cheers...Betty
 
 
Inna Says:
Nov 10, 2008 @ 8:03 pm
 
 
Hi everybody! I have PMR and on 10mg of Prednisone. My doctor wants to take me off now. Please describe the symptoms you had while on prednosone and when you were trying to go down on the dosage. I am having some strange symptoms and don't know if it's PMR, Prednisone or something else.
Thank you!
 
 
Betty Says:
Oct 10, 2008 @ 4:02 pm
 
 
G'day Gerry...I wish you would consider Prednisone. I know it has its down sides but in my mind they outweigh the good. Quality of life means a lot to me. I am diabetic and insulin dependant as you know. Apart from thinning skin...age related as well...I dont have a problem. My attitude is you do what you have to do. Lower doses like we need arent going to kill us. You will be pain free and can enjoy your life fully again. You may only need 6 or 7 mg. morning and night. Twice daily provides better coverage for me. I also had flu and wouldnt have known if it werent for a chesty cough. No fever, no aches and pains, no tiredness, no lack of energy and that speaks volumes. Running out of room...lol...cheers...Betty
 
 
Betty Says:
Oct 10, 2008 @ 7:37 am
 
 
Beryl....headaches can be a side effect of Pred. but not bad and vision altering like you describe. Please demand a temporal artery biopsy...I had it done about 2 months ago to rule out temporal arteritis and I didnt have it. If those temples are swollen or sore or the headaches its a fair possibility. Its no big deal to have the biopsy done. Peace of mind or treatment is at the end of it. High doses of Prednisone is the cure if you have it. Nothing is worth going blind over or risking a stroke or worse. Cheers...Betty
 
 
Betty Says:
Oct 10, 2008 @ 7:34 am
 
 
Beryl...Part 3...My dose is initially for 6 weeks...if no symptoms....then reduce 1mg for 4 weeks....if still symptom free reduce another mg for 4 weeks. If symptoms return, dose goes up 1 mg daily until symptom free again and start the 6 weeks again. Once down to about 4 mg a day, the dose reduces by half a mg for the next 4 weeks and come down like that. It has to be like this for it to try to get rid of the complaint. On to Part whatever
 
 
Betty Says:
Oct 10, 2008 @ 7:32 am
 
 
Beryl...we do get desperate with this until its under control. I had to split my dose for Pred. morning and night and it was much better. I am on 12 mg daily at the moment....6 morning 6 night. I am Diabetic on Insulin as its still worth the hassle to be free of symptoms and to probably get rid of this thing eventually. Its a long drawn out process....maybe another 18 months to 2 years on gradually reducing doses of prednisone....on to Part 3
 
 
Betty Says:
Oct 10, 2008 @ 7:30 am
 
 
Hello Beryl...Have you had a temporal artery biopsy done to rule out temporal artiritis with regard to your headaches? I strongly urge you to get this done...TA can render you permanently blind. From where I stand Beryl if you have pain in those areas...hips neck etc...its the PMR. The prednisone dose has to be such that you are above the symptoms...no symptoms....not way above but far enough to keep them away. I will do a Part 2 here
 
 
Betty Says:
Oct 10, 2008 @ 7:26 am
 
 
Hello Gerry...I found that happened a couple of times too...just rent and see how you go...you will at least still have your current home then. I am good at the moment thanks Gerry....took the Prednisone up to where I am symptom free and going from there. The Rheumatologist and Endocrinologist and my local doctor all agree that its the way to go so Im there..12mg total a day. Things are going great. I wish I had a solution for you Gerry...take care and talk to you later...Cheers....Betty
 
 
gerry Says:
Oct 09, 2008 @ 8:31 am
 
 
Hi Darlene, l agree with you maybe the webmaster could cut down the early comments which would make it quicker to get here, we can always fill the gaps up again, cheeers gerry
 
 
gerry Says:
Oct 09, 2008 @ 8:29 am
 
 
Hi Betty, l am 61 62 in december, bit heavier than you, trying to lose some weight but!!! think simvastatins have a bad reputation for causing muscle problems remember the web site you gave me about them, how are you at the moment? Betty, l know it sounds a bit naff but l went away for 4 weeks to another county along the coast, and did not have half the pain l have here at home, since getting back here the pain, aches, stiffness are returning again, so thinking of selling up and moving, anything to ease this awful pain, aches, stiffness lifestyle l am going through, trust me to want to sell when we are in the state we are in in this counrty with our banks, needless to say l may try renting elsewhere just to check things out, dont try dont know, meanwhile the sun is shinning here today so that cheers us up, keep in touch, cheers gerry
 
 
gerry Says:
Oct 09, 2008 @ 8:19 am
 
 
Hi Beryl welcome to our web site, regarding your symtoms it could be that you have a kind of pmr that effects the large cell arteries in the head, l am not a doctor, but have read of this, then again it could be the side effects of the steriods, or just the pmr itself, hopefully Betty will read your comment and reply, Betty seems to understand the side effects of the steriods and may be able to advise you, it is awful this pmr and one can feel really desperate but you just have to hang in there and try diets, vitamins, and our little group is a great friend in the background, also explain things to your doctor, he or she may be able to help, keep in touch and let us know the outcome, cheers gerry
 
 
Darlene Says:
Sep 18, 2008 @ 9:46 am
 
 
webmaster--would it be possible to flip the comments so the most current date is at the time. It's a long way to the end.

Thank you for your consideration.
 
 
Darlene Says:
Sep 18, 2008 @ 9:44 am
 
 
Having been doing self test and find flour or bran based products causes a painful reaction. Never experienced pain in the hips and with all the side offects of prednisone have been trying to reduce intake. I am over 60 but have been an exercise nut all my life. Thought this only happened to couch potatoes. Don't like eating all this crow.
 
 
Beryl Price Says:
Sep 17, 2008 @ 9:58 am
 
 
Hello everyone

This is the first time that I have posted anything to a site like this, so I must be desparate ! I was diagnoes with PMR in Jan 2008 My journey is similar to everyone elses but I am going through a phase of desparation. I am on 14mg taken after breakfast. Each morning I wake up with aches in my neck shoulders and tops of my thighs and buttocks. I have blurred vision most of the time and feel like I am walking in mud and a dense fog. Head pain is awful at times and vomitting and just feeling unwell. Is this the condition or steroids or both. Any Ideas would be helpfull
 
 
Betty Says:
Sep 13, 2008 @ 6:55 am
 
 
Got worse each day until end of Feb and was ready to step in front of a train...could hardly move and the pain was unreal. Went on Prednisone and within 2 hrs good as gold. Had flu in Oct 07 so could well have been the start of things going bad. It may have been a virus that set it off slowly until the statin drug. Stress could have come into play also. Cant think of any food that would have been a cause for me. Cheers...Betty
 
 
Betty Says:
Sep 13, 2008 @ 6:53 am
 
 
Hello Gerry....Im 5ft 5 and weigh 77 kg...approx 12 stone...am 60 now. First had symptoms 2-3 years ago with supposed frozen shoulder but is believed now to have been the start of PMR. Was put on Diabex for diabetes Nov 07 and muscle probs took off but only reasonably mild. Put on Simvastatin in Jan 08 and within 3-5 days pain was a lot worse in muscles. Gave up both drugs 3 weeks later but too late. Will finish this soon. Cheers...Betty
 
 
Teresa Zaferes Says:
Sep 13, 2008 @ 1:41 am
 
 
hi gang, I don't know what's happen went down to 8grams and haven't been without pain i always get allittle pain when I go down and try to go down 1/2 a grm per Doc. I just had a day that I haven't had for months, in the morning felt bad but when I had to do a errand I was hardly able to walk the store when recently been able to do w/o severe pain the pain in my hips,the fatigue when I got home. I feel like old times when it really was severe pain, just scared that it's coming back w/o me gong back up in dose, any similar experiences?
 
 
gerry Says:
Sep 12, 2008 @ 12:02 pm
 
 
Hi Betty and everyone, it is really good that there is so many of us, and that we are all sharing our problems with each other in the attemps to help each other, it is good to know ther are others out there that can group together and be nice to each other and help if we can. What l was wondering is this, is there a common denominator amongst us that triggers this pmr off? Could it be age, weight, stress, responsibility, area we live in, l do know that some foods make me worse, maybe we could all write in with our brief details and see, me first, l am 5foot 6inches, weigh 13 and half stone, and have a husband that is helpful one day and a pain the next, hence stress. lets go from here okay, hope alls well with you Betty, speak soon. cheers gerry
 
 
sue Says:
Sep 12, 2008 @ 1:18 am
 
 
Hi everyone, thought i would let you know i am now off the steriods at last.
Still have a bit of pain but not like before. I just hope i do not start again. Dr can not guarantee it will not come back. I still think wheat sets me off. Keep trying it but i get really bad aches all over. Learnt my lesson now, and i do not eat so much dairy noweither. So good luck everyone and do not give up. When i first started could not even put my own bra and pants on. Now i even do exercise.
 
 
Darlene Says:
Sep 09, 2008 @ 12:18 pm
 
 
Reply to Imma. Yes, I cut myself down to 5mg instead of 10mg per day. Did not make the doc happy but he doesn't have to live with crawling skin. The pain has gone from 10 to 2 so I am not complaining.
 
 
Inna Says:
Aug 05, 2008 @ 9:18 pm
 
 
Hi everybody! Thank you for your help.
I have an interesting symptom: tingling
sensation or crawling under my skin all
over my body. Could that be related to my PMR?
 
 
Betty Says:
Aug 05, 2008 @ 5:50 pm
 
 
its no barrel of laughs Gerry...thats for sure but as you say you have to laugh or you'd cry and yes...I did a bit of the latter too in the early days. I am back on track now...got the green light from the Rheumo on Methotrexate so Im happy now. Folic Acid was on the wrong dose...supposed to be the 6 days that you dont take Meth. It gets rid of the side effects of Meth. Diabetes is all but sorted out now...just fine tuning insulin. I believe IVe had PMR for about 3 years so in a way its a plus...only 2 to go hopefully...take care Gerry..cheers..Betty
 
 
Betty Says:
Aug 05, 2008 @ 5:46 pm
 
 
Th...this complaint is something you wouldnt wish on your worst enemy. People with mild symptoms are lucky. I had it almost everywhere and had to resort to prednisone...I got total relief with it but few other problems from the drug but none that cant be handled at present. Also on Methotrexate to enable the pred. dose to be lowered and still be effective. It works. I am only a few kilos overweight so its not a problem. I would think about te bypass thingy if I was you.
Cheers...Betty
 
 
Betty Says:
Aug 05, 2008 @ 5:43 pm
 
 
Hello Gerry...yes Methotrexate kinda replaces prednisone. You take it once a week and 1 folic acid on the other 6 days. I am on 4mg Pred morning and 4mg pred nightly since Methotrexate. I was on 8mg morning and 8mg nightly before Methotrexate. I still have a few probs in the tops of my legs and butt cheeks. I have a prob with my teeth...cant tolerate cool or cold things...only since Prednisone started though so obviously theres a connections...cheer...Betty
 
 
Gerry Says:
Jul 31, 2008 @ 8:21 am
 
 
Hi Betty,
Sorry to hear the symptoms are returning, and you know what suits you best, you are the one with the pain, these doctors should listen to us rather than just mess us about, l can see what you are saying regarding upping the dose then lowering it, the body is getting used to it and it is not helping, just tell them how you feel about Pred, tell them you know the side effects and that the dose that suits you is......., hope the pain eases for you, myself well getting out of a chair l need someone to get round behing and lift my butt up, nothing lady like when your in pain is there, and my waist at the back is straining trying to get myself out of bed, arms, hands, knees, booms-a-daisy, one has to joke and laugh about it or cry, and l've done a fair amount of that, speak soon, regards Gerry
 
 
Gerry Says:
Jul 31, 2008 @ 8:11 am
 
 
Hallo Inna, welcome to our group,l think your nose and teeth problems are side effects of pred, you should mention it to your gp, ask him to get it checked out for you, maybe an x-ray, or ask if there is another pill that you can have instead, which works the same way as pred, l think the Methotrexate, that Betty is on is for people that find Pred intolerable, so do ask, dont just suffer, good luck okay, Gerry
 
 
Tj Says:
Jul 30, 2008 @ 3:42 am
 
 
I've had PMR for over a year, had a relapse, didn't know what hit me I'm 51, I am a large women but never had let it stop me, problems walking and never been so tired, some days i get so tired it gets me depressed, down to 8mg.right now, and my neck, my wrist and ankles throb so hard. some times just to do household chores is so painfuff, and to mention it without everyone thinking I'm just lazy, that's why so glad to see, there are people who understand the illment, doc thinking of giving me gastro/bypass to get rid of extra weight, sounds like a good plan what do you think?
 
 
Sue Says:
Jul 30, 2008 @ 1:04 am
 
 
Hi Sharon, Just wondered if you have tried that detox plan, or just stopped wheat. and how it has worked. Sue
 
 
Sue Says:
Jul 30, 2008 @ 1:02 am
 
 
Hi Gerry, how are you have you started that detox and if you did has it worked or helped. would love to know. Sue
 
 
Sue Says:
Jul 30, 2008 @ 12:59 am
 
 
Hi Michelle, sorry to hear about your granny, she must be a very strong minded person, you must be very proud of her. this disease is a very tiring one and we all only cope one day at a time. I am lucky at the moment as i am only on a small dose. and hopefully going down again next month. I still get some problems but not much but one is the tiredness. However i have cut out wheat and a lot of dairy products and that has seemed to have helped somehow. Michelle just go one day at a time and help has much has you can. Your gran is very luckly to have such a caring grandaughter as you,
 
 
adele Says:
Jul 27, 2008 @ 1:36 pm
 
 
Hi Inna. My name is Adele. I have been reading these comments as I had PMR almost 10 years ago and actually got over it! Now it seems to have returned, but in a much milder form. I have been trying to find out if there is anything else I can do because I will not go back on the prednisone. As to your problem, I have read that if one receives a diagnosis for PMR, have your Dr check for a related condition called giant cell arteritis, which occurs in some people with PMR. Signs and symptoms - such as new headaches, a tender scalp, pain when you chew, visual changes including double vision or visual loss along with the results of a "sed rate" test can help determine whether you have this disorder. Good luck.
 
 
Lori Says:
Jul 25, 2008 @ 3:08 pm
 
 
I have been recently diagnosed with PMR and my doctor has prescribed 20 milligrams a day of prednisone. I have not started it yet as I was a afraid of all of the side effects (weight gain, moon face, insomnia, etc.) and toxicity to my body. I am seeing a holistic doctor who is treating me with quantum biofeedback and giving me antioxidants, omega 3-6-9, Wobenzyme N, etc. Today I will have my second treatment. After my first therapy session, I noticed that I was feeling better but now a week later, my symptoms have gotten a bit worse in the night. Hopefully, today's session will help and get me a little further on with feeling better.
 
 
Michelle Says:
Jul 24, 2008 @ 3:35 pm
 
 
im 14 and my granny's had polymyalgia rheumatica for about 3 years now - it started really suddenly, one day she was perfectly healthy and the next she couldnt move. im not really sure what medication she's on at the minute but i know she's been on steriods, morphine and heaps of painkillers all this time. right now she can barely walk and sits at work in a wheelchair - that's right, work. she was 70 in april this year and my grandad won't retire, so therefore my granny won't. this is putting a major strain on our whole family as she can hardly cope with the pain etc, and im just wondering how do the rest of you and your families cope with your illness? would appreciate some response
thanks (:
 
 
Betty Says:
Jul 24, 2008 @ 3:27 pm
 
 
Hello Liz...I had sweating as part of the symptoms of PMR. From what I know 5mg of Pred..whether daily or per dose...is no where near enough. The dose has to be high enough to be symptom free or it will not work. A lot of people end up on that dose near the end of the treatment...like a maintenance dose. I started off on 25mg for the first dose in the morning and 20mg at night...the night one was only for a couple of days. It is a long drawn out procedure....cheers...Betty....good luck.
 
 
Ann Clarke Says:
Jul 24, 2008 @ 5:40 am
 
 
Hi Liz I don't know what amount of pred you started on but I started on 20mg in february this year and now I am on 7.5mg it helps but it does not cure it completely. I still have very bad days and some that are slightly uncofortabl. I still suffer with sweating some days again are better than others but if i try and do quite a bit aroung the house its very bad. I think this is a symptom of the disease and not the medication. Hope it gets better for you soon. Ann
 
 
Inna Shtarkman Says:
Jul 23, 2008 @ 4:03 pm
 
 
Hi! My name is Inna. I have PMR and on 20 mg of pred for 2 weeks now. I have a bizzare symptom: terrible pressure in the bridge of my nose and my upper teeth like my head is going to explode but I don't have stuffy nose or sinus in-fection. Did anybody experienced that and could that be related to my pmr?
My rheumo sends me to my MD and my MD is sending me back to my rheumo.
Help!
 
 
liz Says:
Jul 23, 2008 @ 2:03 pm
 
 
hi my name is liz just started on pred but not helping much 5mg just want to know if the constent sweating is part of the medication Liz
 
 
sue Says:
Jul 23, 2008 @ 3:58 am
 
 
Hi Beej,
Sorry do not know, but if you are having problems you should go and see your doctor. Hope everything ok.
 
 
ann clarke Says:
Jul 20, 2008 @ 4:06 am
 
 
Hi Patty, I don't know if PMR does effect the lungs but I too suffer with shortness of breath especially after I have walked a short distance or up a slight incline, and somtimes it feels like I am going to have a heart attack with the pain in my chest,also I have days when my feet and ankles are swollen, luckily I have a great husband who takes time to gently massage my feet and legs even though it is very painful it helps to get the swelling down. Hope things get better for you mother soon. Take care Ann x
 
 
Betty Says:
Jul 16, 2008 @ 4:33 pm
 
 
Hello Gerry...I understand now and cant say I blame you...I am off to the Rheum. again in 2 weeks to get back on track with PM again. Symptoms are returning more each time the Pred. dose drops and thats a waste of my time and Pred. While I have symptoms its useless wasting Pred with a lower dose. Some doctors cant stand the medications that another doctor has prescribed and just have to change things...cheers...Betty
 
 
Beej Says:
Jul 16, 2008 @ 12:49 pm
 
 
Hi everybody, Would anyone know if polymylgia interferes with the blood vessls in the lungs and heart? I have mechanical heart valves and pulmonary hypertension. Lately I have noticed my breathing somewhat more strained. Maybe I'm convincing myself it is weather related.
Very happy that I found this site. Wish you all well.
 
 
gerry Says:
Jul 16, 2008 @ 2:56 am
 
 
Hi Betty

The reason l am so against prednisone is that my mother, bless her, was given it at the age of about 46, and they never took her off of it, hence it really mucked her life up, and l was with her at the end, when she was 70, still a young woman in herself, but ruined by the prednisone, so l am a bit running scared of it, and if there is another solution that does not involve drugs then l am there for it, seen too many drugs ruin peoples lives, but the pain can be a real tester, no heros here.
regards gerry
 
 
Sue Says:
Jul 15, 2008 @ 9:17 am
 
 
Hi Ann, so sorry to hear about you being made redundant. It is very hard as you get so tired and can find it a real chore to go to work. I am now only on 2mg a day so i am getting there. I hope you do to. You have to take one day at a time. They say when one door closes another opens. So good luck.
 
 
Ann Clarke Says:
Jul 10, 2008 @ 4:36 am
 
 
Hi everyone I have not posted for a while but I was wondering how you all cope with working full time. I have just been made redundant and will leave in about five week time and am really worried about finding another job as I can cope with this one as I know what is expected of me. Am still on pred 7.5mg a day and now have high blood pressure and am on tablets for that. How doyou all cope with work. ??
 
 
Betty Says:
Jul 08, 2008 @ 4:12 am
 
 
Yes Gerry..its great to see so many different comments now. This polymyalgia will be as common as a head cold soon. The Methotrexate doesnt interfere with diabetes like Prednisone. Havnt noticed any adverse side effects yet so hopefully I wont have any now. Today I feel great...no aches n pains in my hips region which is a huge plus so the Methotrexate must have kicked in...takes about 4 weeks evidently. Is there a reason Gerry why you dont want to use Prednisone?...Cheers...Betty...Take care
 
 
Betty Says:
Jul 08, 2008 @ 4:08 am
 
 
Hello Gerry...yes theres more of us all the time and thank you so much for the vote of confidence...greatly appreciated. I agree with what you say about me anyway...lol. The methotrexate in my case is being used to wean me onto a lower dose of prednisone which wont affect my diabetes. Its working so far. The folic acid is to put the lid on the methotrexate so to speak. The diabetes is excellent now. At the end of this week I will be down to 7mg daily of Pred. which will be great....cheers...Betty
 
 
gerry Says:
Jul 07, 2008 @ 6:56 am
 
 
Dear Betty,

My we are close with the birthdays, and when we started on this site there were only a few, look at it now 103 comments!!!

l reckon we should have met sooner and gone into business together there would have been no stoping us, l can feel the force in you, you are a do-er, not one to sit and think about it, but one who gets in there and does it, what a shame we are both stuck with this flipping pmr, hopefully your prednisone will keep you clear of pain, l thought the methotrexate was only used on people whom could not tolerate prednisone?? maybe wrong.

Anyway we plod on hopefully, ever the optomist, spelling up the creek, tired, and painkillers, but!!!

Take care regards gerry
 
 
Betty Says:
Jul 01, 2008 @ 11:54 pm
 
 
I am December 29th Gerry...close hey...lol. Born in 1947...close again. Things are niggling away again..down to 8mg prednisone total a day. Go down to 7mg in a bit over a week. Hopefully that methotrexate will kick in in the next week or two. Diabetes is improving. Have dropped the rapid insulin down 4 units now on the original and I havnt started to exercise yet so maybe I can drop it further then. Great to hear from you again...take care...cheers...Betty
 
 
Betty Says:
Jun 29, 2008 @ 2:25 pm
 
 
Well Iain I think theyre on the right track. I know where youre coming from as far as a permanent fix. Once you get rid of that pain it is a huge relief let me tell ya. Been there done that. You actually get your life back again. I dont like the drugs either but had no choice. I had a lot of living to still do. Best of luck...cheers..Betty
 
 
gerry Says:
Jun 28, 2008 @ 8:40 am
 
 
Hi Betty thanks for caring when you did not hear from me, l knew you were a fellow capricorn, we are a certain type, but at least we are there for each other, l am dec 28th 1946, guess sometimes the pain really gets to me and l switch off from people, but knowing your there helps, take care speak soon, gerry
 
 
Betty Says:
Jun 25, 2008 @ 4:25 am
 
 
Part 4 Gerry. I have a friend in a graphics Yahoo Group who has polymyalgia and wants to join a forum so IVe steered here in our direction. The poor woman has had it for about 13 years I think. Also a diabetic and on prednisone and in constant pain even with the prednisone. Hopefully she will turn up here...Sharon is her name. As she said, unless people have polymyalgia they cant really get a grip on what its all about. We will just keep pluggin along...nothing else we can do. You take care Gerry and hope to hear from you again real soon. I began to worry about you when you went real quiet on us....Cheers..Betty
 
 
Betty Says:
Jun 25, 2008 @ 4:23 am
 
 
Part 3. Im gettin there Gerry..lol. I reckon we must've killed a busload of Chinamen...lol. I was sittin in the hospital minding my own business when all of a sudden I got numbness in my little finger and half of the one next to it and that side of my hand front and back. Seems its a pinched ulna nerve. The arm is as weak as dishwater now so have to get that looked at...unbelievable. I just wish I could come up with an answer for your pain Gerry that doesnt include prednisone. End of Part 3.
 
 
Betty Says:
Jun 25, 2008 @ 4:20 am
 
 
Part 2. Prednisone has been cut down to 5mg morning 5mg night. Methotrexate (I know) has been introduced...15mg 1 day a week. Folic Acid...1 tablet...3 days after that and only once a week. Apart from the odd all day headache I have no symptoms of polymyalgia and thats good. They aim to drop the prednisone 1mg daily every 2 weeks till I get down to 5mg daily and that is an acceptable dose to not affect the diabetes...so they say. End of Part 2.
 
 
Betty Says:
Jun 25, 2008 @ 4:18 am
 
 
G'day Gerry...great to hear from you again. I will probably have to do this in a few parts as a long reply seems to get chopped off mid stream. I am Capricorn..the ruddy old goat...lol. A lot has happened the last 2 weeks. I have been in hospital for almost the 2 weeks getting my diabetes straightened out. Am on 4 insulin injections a day now...a breeze...very insulin resistant...and am good now in that area. Need a bit more fine tuning. End of Part 1.
 
 
iain mac Says:
Jun 24, 2008 @ 6:40 pm
 
 
after six months of no sleep or mobility i changed doctors and was sent for more tests than allan border the doc was at least honest enough to say he was not sure what my problem is so reffered me on to a rheumo who is now sending me for further tests to confirm that my problem is pma (previously r.a. suspected) It is heartening to find others with same or similar agues as I was seriously contemplating elevating the pain in a permanent way. I will now regard the possibililty of a future pain free with the aid of drugs of any kind and knowing there is others in the same discomfort best regards to all I will notify you of progress if any
iain m
 
 
Patty P Says:
Jun 15, 2008 @ 7:13 pm
 
 
My mom has PMR;she is on 15 mg of Prednisone daily. Presently she is having terrible trouble with edema in her feet and legs.
she takes lasix per her FMD-but for about 2 wks now the feet are not improving.
she is also very easily short of breath.
does PMR affect the lungs or chest wall muscles???
Thanks
Patty
 
 
gerry Says:
Jun 12, 2008 @ 6:55 am
 
 
Hi Betty,
Thought l would say hallo and ask how you are doing, well l hope, looks like since me and you got started we have got a lot more people on the list, we should have gone into buisness together both driving forces, shame about the steriods, but you would not take them if you could do without them l know that, so l am right behind you, as l know what the pain can do to us, never known anything like it, really ruddy awful is mild way to explain it, my left arm feels like it has been broken at the shoulder and is just hanging loose, cannot move it in the morning, and the pain........., must have been really bad in a past life to get this, what star sign are you?? love to know, thanks,

Take care lots of thoughts go to you, keep in touch, gerry
 
 
gerry Says:
Jun 07, 2008 @ 5:51 am
 
 
Hi Bob
Welcome to our little group, sorry it is because of pain, but welcome anyway.

Regarding your feet, are you by any chance on either duretic, or cholestrol pills?? One is a pill to rid the body of excess water, the other is to reduce the bad cholestrol in the body, and either of these could account for the feet problems, also some blood pressure pills have the same bad effect on your feet, so do check these out first, if you get nowhere with this, then try Orthodics, l have probally spelt it wrong, but it is a lazer x-ray which will detect what is wrong with your feet and then sort some shoes out that correct the problem, do look into it, okay it may not sound to good, but if your feet hurt as much as that it may be worth a try, as l am sure you would rather try and get it better than to struggle getting your feet on the ground first thing in the morning and having to balance on your toes till you get going, also avoid the injection in your feet if offered by the g.p, quite ...
 
 
Beej Says:
Jun 05, 2008 @ 12:37 pm
 
 
Hi Sue and thanks for your reply.
It would be great to be able to get off the steroids as I am taking so many other meds for heart and lungs. The drs. hate to give me more and at this point all there is for me are the steroids.
I am basically a vegetarian but at times do have a little fish or chicken so I suppose that helps. Again thanks for your reply and good luck to you.
Beej
 
 
sue Says:
Jun 05, 2008 @ 6:29 am
 
 
Hi Beej, As far as i am aware pmr last for about 2 years and then some people still develope the symptoms. My dr told me i would have to stay on steriods for two years. But if you have no symptoms and feel fine. Good luck.
 
 
Beej Says:
Jun 04, 2008 @ 8:42 am
 
 
Hi, I'm fairly new to this health problem.
I was shocked whem my dr. phoned to tell me that after just 2 weeks on prednisone that my blood tests were normal. I did not think to ask that when I finish the prednisone treatment in about 3 months will that mean cured. Would anyone know about this and if it has happened to others?
Thanks
 
 
Sue Says:
Jun 04, 2008 @ 12:50 am
 
 
Hi Bob,

Sorry to hear you are back up to 40mg of prednizone, that must be heart rending. Unfortunatley not had the problems with my feet except hurting by standing on them to long, and thats only because of not being able to do anything for so long. Has the doctor said it is pmr in your feet.


sue
 
 
bob Says:
Jun 02, 2008 @ 5:31 am
 
 
Have had PMR (diagnosed) for about 2 years. Started with 80mg of Prednizone, to 60,to 40, to 20, to 10; then back up to 40 as a result of a flare up. Maintaining now at 20mg, but continue to notice extreme pain from time to time in my feet (ball of my right foot predominately and small toe on same foot and general pain on the bottom of my left). This is most noticeale upon waking in the morning and after long periods of time standing. Walking is both painful and requires much effort. Bending and stretching the feet backwards to extend the muscles sends seering stabs of pain along the entire foot on both sides (feels like the skin is being cut). This sometimes extends ino the muscles on the back of my shins. Anyone else experience this? If so anything that seems to alleviate/prevent? Thanks.
 
 
jools Says:
May 29, 2008 @ 5:19 pm
 
 
Hi Ron Graham
Always sorry to hear when someone joins our band of PMR sufferers. Your experience of pain relief is not unusual, depending on the dosage of steroids. Unfortunately they often have to be supplemented by Co-Codomol. The monthly blood test is also usual practice. They should also check your blood pressure. The steroids have side effects so you might want to discuss these with your doctor and get him/her to explain these to you. You might want to take a calcium/magnesium supplement, with Vit. D, so the calcium is absorbed.
Betty can also put you onto the support group.
 
 
gerry Says:
May 29, 2008 @ 6:23 am
 
 
Dear Sue

Thanks for your details about Carol Vorderman detox for life, l am going to give it a go, as l have always believed the body will look after itself and heal itself if you look after your body, and that means watch what you eat, but l should think like a lot of us do not know where to start, how to change our eating habits, etc., so l am now going to get the dvd and the book and see what l can do to help myself, l mentioned it to my doctor and he said give it a try nothing to lose maybe something to gain, fair comment, at present struggling with the stiffness and pain, which only those whom have expereinced it know what it is like, constant intermitting pain, what do they say what does not kill you makes you stronger, dont know about that, but at least it gives you the understanding of pain in other sufferers, guess it has taught us all something, sympathy and more, once again thanks for your advice, and what made a difference you left the choice to us, gerry
 
 
Betty Says:
May 24, 2008 @ 7:28 pm
 
 
I found when I was on a lower dose Sue that I had better results by splitting the dose into morning and night...it made a difference to me anyway. I am now on a higher dose than I was back then but the important thing is to stay symptom free with the Prednisone...cheers..Betty
 
 
Sue Says:
May 24, 2008 @ 1:16 am
 
 
Hi Sharon, I think i went on to long. The doctor gave me early blood test. but they came back ok. Thats when i started to think about the food i was eating, so started to eleminate one product at a time and found it was the wheat. Hopefully when i have my next blood test i will be down to 3mg of steriods. I also do a bit of exercise now but only 3 times a week and 3 times on my exercise bike, 20 minutes, low exercise like pilates and 5 to 10 mins on the bike. I did not ask the doctor about the detox but if you are unsure it would not hurt to ask. Good Luck. Sue. Ho by the way linseed is supposed to be very good for pmr i have that on porrige and with my nuts and fruit.
 
 
Sharon Says:
May 22, 2008 @ 9:24 pm
 
 
Hi Sue sorry I forgot to sign my name. Only got to read part of your e-mail but I am so glad to hear from you. I am going to send for the book tonight. I would like to know what the rest of your e-mail said. I felt so alone with this because no one including me had ever heard of it and you are right the pain is horrible. Sharon
 
 
Sue Says:
May 22, 2008 @ 9:23 am
 
 
Hi, Sorry do not know your name.
I do feel for you because no one knows what the pain feels like unless you have or had pmr. When i first started i was off work for 7 weeks could not walk do my hair or even put my pants or socks on, and when i think about it it must have been coming on for months. However i now feel alot better in my mind as well as the body. My biggest problem was the weight i had put on with the steriods. So that was why i was looking for some thing to help me feel better in myself aswell as try and loose some weight. Then i saw Carol Vordenmans DVD in morrison, only £2.99 after i had watched it i bought the book. Felt so well after 2 weeks. and after the 28 days on detox for life i had lost 8lb. which i thought was very good. She said when you start eating normal bring one product back at a time which i did and when i started to eat bread and pasta all my aches and pains returned with such force i thought i had gone right back to where i started. Doctor even had me...
 
 
Sue Says:
May 22, 2008 @ 9:09 am
 
 
Hi Gerry,

I followed Carol Vorderman detox for life. No wheat, coffe, tea, dairy products or meat, chicken, or fish. mainly fruit, veg and rice. Her recipies are lovely, one of them is butternut squash with rice. I did not go to the doctors to ask if it would be ok to go on this, but it is advisable. there are vitamins you can take aswell, but only if you want. I bought her DVD and was quite taken. However i still have to be carefull how much exercise i do. Hope this will be of help, Next month after my blood test will be down to 3mg a day. thank goodness. It is a balancing job. so good luck sue
 
 
Sue Says:
May 22, 2008 @ 8:58 am
 
 
Hi Betty,
I am now on 4mg a day. I have noticed that some people take them twice a day. I always thought you had to take them all at once.. Sue
 
 
gerry Says:
May 21, 2008 @ 9:35 am
 
 
Dear Sue can you give us more details about the detox for life you mentioned in your comment, l really would prefer like l guess all the rest of us to get better naturally, pills are bad news no two ways about it, and if there is another way then lets go for it, appreciate your help, and many thanks, gerry
 
 
gerry Says:
May 21, 2008 @ 9:27 am
 
 
Dear Jamie regarding your mum the Methotrexate is an disease modifying antirheumatic drug used for people whom cannot take steriods or whom are intolerant to other therapy there are quite a few of these drugs and some are less harmful than others so ask your doctor if your mother has to have these type of drugs could he recommend one with the minimum of side effects prehaps one which can also be used on children which in theory should be milder, the water tablets are a duretic which the lemon is also, plus dandelion leaves from the garden can be used in salads wash first, will write again later, keep in touch, kind regards gerry
 
 
hilary Says:
May 20, 2008 @ 4:00 pm
 
 
Hello fellow sufferers, I was diagnosed withPMR, after 3mths of pain and stiffness, Started treatment with 40mgs for 5 days. Brilliant I was like a toddler on speed.I have now gradually reduced to 8mg per day , now going down 1mg per day, and taking calcium tablets daily, and the 1 a week booster for bone strength. I keep to a very healthy diet Oily fish,fruit, nuts,no tea or coffee, but lots of fresh water. plenty of green veg,I am now feeling 10, or sometimes 20 years younger. I hope this is a help , gentle exercise is ok so long as its not overdone. goodluck and best wishes.
 
 
Hi Sue and all Says:
May 17, 2008 @ 8:44 am
 
 
Ihave been battleing pmr for about eight months now I have to take 15 mg daily and I hate it. Beside the constant pain if I try to have a lower dose of prednisone it moves around and attacks my joints. Could you tell me more about detox for life.
 
 
Betty Says:
May 16, 2008 @ 5:39 pm
 
 
I would go with her too Jamie. You cannot hide the pain if its bad and you are so stiff. People suffer from mild to severe pain with it. I have it in the shoulders, neck, right elbow, wrists, some fingers, tops of both legs and hip areas, both hamstrings, left knee. It didnt leave much out. I was in pretty severe pain. I couldnt pull a sheet up over me in bed, roll over in bed etc. etc. Too stiff and too painful. Others only get it in say their jaw and mild...they are lucky. Prednisone is the teller of the tale..if you respond to it you have it. I responded in 2 hrs and the results were unbelievable....no pain and free as a bird. I consider myself lucky. I feel Pred. is a small price to pay to get my quality of life back and my life in general. I havnt felt better in years. Sugar levels are crazy but we're workin on them. Admittedly there are side effects of Pred. but to me they are pale in significance compared to what I had before I took the drug....hope it all works out for your Mum...
 
 
Betty Says:
May 16, 2008 @ 5:34 pm
 
 
So that is 4mg per day Sue or twice a day? So glad you are goin great...once I can get down to just 5mg a day things might be a lot better with my diabetes. At the moment I am battling high readings which was to be expected anyway...cheers, Betty
 
 
Sue Says:
May 16, 2008 @ 2:30 am
 
 
Hi all,
I have been on prendnisone now for a year and 2 months gradually reducing them, I am now only on 4mg and am feeling rather well no more night sweats and if like i said keep off the wheat and do not over do housework or excersice. I know how everyone feels about the steriods in fact i do not like taking any medication but when needs must. with the steriods i have to have calium tablets with vitiaman D that is to help my body absorb the calium. But like i said i only really started to feel well after going on that detox for life. Not looked back now for a couple of months. I will always watch what i eat now. Also added bonus i am still losing weight slow i admit but it is going, which is helping with my gammy knee. Good luck to you all Sue
 
 
jamie Says:
May 13, 2008 @ 12:20 pm
 
 
thanks for your comments betty & Gerry , alledgedly she is on the methotrexate as the prendnisone is not working , she is being reduced of the prendnisone gradually but we are not very happy with the side effects of the other drug , we are going to go with her on the next doctors appointment. You are quiote right in what you say , with regards to taking medicines that doctors prescibe , mum mum is old school , she would not question them , but she is getting stronger at it know.Thanks for the tips about the lemon juice i will pass it on , she also takes a water tablet , i guess this is for water issues aswell. Could anyone say what the pain of PMR is like ? my mum is a very strong lady,dosent moan about it , sometimes its hard to guage what she is suffering.Thanks again for the advise. take care Jamie
 
 
Betty Says:
May 12, 2008 @ 1:20 pm
 
 
Hello Sue..thanks a lot for that. I am seeing another Iridologist in a couple of days and your comments are interesting and make sense to me. I will run the wheat thingy by her. I believe some of our probs. in general come back to what we eat...As Gerry said, the doctors dont know everything and we have to do some research ourselves and not rely on them 100%. I also think different things affect each one of us differently too.
 
 
sue Says:
May 12, 2008 @ 8:38 am
 
 
Betty, thanks for the comment. Have sent a comment in to all. I Went on a detox diet Carol Vordamans only 28 days very good. I have now found that wheat starts my symstems going again. so hope this will help anyone.
 
 
gerry Says:
May 12, 2008 @ 6:30 am
 
 
Hallo Jamie it is really good that you are checking things out for your mum, nice to have a loving son, the breathlessness could be due to the weight, or maybe fluid retention? your mum could try a glass of water first thing in the morning with fresh lemon juice squeezed in, works as a duretic, and although lemon is quite acid, in the stomach it is akaline, and balances the acid in the stomach, so should not affect the pmr, Do get a second opinion regarding the tablets, trouble is most people trust the doctors, and are frightened, my mum was on pregnisone from age 43 to 70, it really mucked her life up, but she was frightened to stop taking the pills, got a moonface, breathlessness, heart problems, weight gain, etc., l will check on the methotrexate for you and come back later in week, try the internet for methotrexate and side effects. take care gerry.
 
 
Betty Says:
May 09, 2008 @ 10:15 pm
 
 
Jamie...I have no idea why she would be taking that drug. If it was me I would get rid of it...the only treatment for polymyalgia is prednisone...nothing else that I know of. The side effects of that meth....drug are horrendous and could quite well be the cause of your Mum's breathing etc. probs. I am on 8mg of Pred. day and night...16mg daily total to keep the symptoms away. I will be on that for 6 weeks and then drop 1mg per day...staying on that dose for a month...then drop another 1mg daily etc. It is expected that I am on that drug for 18months to 3 years. I have raised sugar levels but is a small price to pay for being pain free & stress free...cheers..Betty
 
 
Jamie Says:
May 08, 2008 @ 1:48 pm
 
 
Help !! my mum has been diagnosed with pmr , she has been on prednisone 10mg a day for a long time , she also has to take methotrexate once a week.She is suffering from weight gain and severe breathlesness , she also has a eye problem, when you read all about the side effects of these,you kind of think she should stop these straight away.Has anyone had any experience with these before ? if so i would really appreciate your views. she has had a hospital appointment today and has come back saying she needs a heart scan and breathing tests done due to the breathlessness but when you read the side effects of the methotrexate you start to worry.To make matters worse the consultant has upped her dosage of that one to 15mg per week. if any one has any advise on this it would be appreciated. sorry if the spellings bad in places i cant find my glasses. thanks jamie
 
 
Betty Says:
Apr 28, 2008 @ 3:40 pm
 
 
thanks Mickey....there is no alternative that I know of. The specialists here know of no other alternative either. Its Prednisone or pain and misery....a road which I could no longer go down. Quality of life is important to me and I had none before Pred. So far I havnt had a problem but I am taking as many precautions as I can. Hope things go great for you Mickey and thanks for the info....Cheers....Betty
 
 
mickey Says:
Apr 26, 2008 @ 4:38 am
 
 
Hallo Betty and Gerry Mickey here read all your comments and have to say that the prednisone is really bad news there is a hell of a lot of steriod abuse cases going to court in london at the moment it really mucks up the body this l know cause l am one of the cases going to court about what prednisone and pregnisone have done to me so if you girls can find an alternative then go for it. cheers mickey
 
 
Betty Says:
Apr 21, 2008 @ 1:09 am
 
 
Sue...saw another rheumatologist last week and he said the dose has to be high enough to keep the symptoms gone...he increased mine by 2mg morning and night....7mg morning and 7mg night is my dose now and I am symptom free. If you arent symptom free it wont get rid of it. He also told me I will be on it for 18months to 2years to start with with gradually decreasing doses....could even be 3 yrs he said. Im prepared to do that to get rid of this thing. I am diabetic and have to be very careful with my diet now. Am just starting a low impact weights programme for my muscles..calcium for my bones.
 
 
Betty Says:
Apr 17, 2008 @ 5:41 am
 
 
Hello Gerry...great to hear from you. My prednisone has been increased by 2mg morning and night to keep the symptoms completely gone....7mg each time now. Have to be on a gradual lessening dose for the next 18months to 2 years and maybe 3 years...depending on how it responds. Have to have calcium with Vit. K as being in the sun can supposedly cause skin cancers from taking pred. according to the rheumatologist yesterday. Have to have biopsy of my temporal artery to rule out temporal arteritis. Dont need that as pred. has to be increased quite a bit. Must get to bed..late...talk to you again Gerry and hope that the cabbage does you a lot of good...cheers...take care...Betty
 
 
Betty Says:
Apr 10, 2008 @ 2:07 pm
 
 
I have a Crystal Bible Gerry...all about crystals....I have ordered a Cathedral Quartz...its supposed to be excellent with pain. Whether its properties are strong enough to counteract this pain from PR remains to be seen. Its a long shot. Lavender oil is supposed to be good for pain too...Cheers Betty
 
 
Betty Says:
Apr 10, 2008 @ 2:03 pm
 
 
Hello Gerry....I hope that cabbage water does the trick for you...I too would rather not take cortisone...had a bad reaction to it 2 yrs ago so was very scared to start with but is OK...lower dose..thank God.There just doesnt seem to be any other way out of this mess. Anyone with a mild form is very lucky or with it in only 1 place. Even had intense earache in left ear with this thing. The only other place it left alone was my calf muscles and feet...back was starting to get it in the end before the tabs kept it at bay. I will keep looking Gerry...take care...cheers..Betty
 
 
Gerry Says:
Apr 10, 2008 @ 2:14 am
 
 
Hi Jools
Thanks for joining us with your comments about Devils Claw, l had noticed it in a herb book but was wondering weather to take it or not, so your comments were helpful, it is nicer if we use something natural, if we can, so will give it a try many thanks, gerry
 
 
Gerry Says:
Apr 10, 2008 @ 2:09 am
 
 
Hi Mike

Glad you have joined our little group, sorry it is because you are suffering pain, it all depends whereabouts on you back the pain is? If it is low in your back it could just be a pulled muscle, or a strain, are you getting pain in your arms, shoulders, wrists, ? l find the pain from back problems totally different from the pain of pmr, backache hurts when you try to do anything, pmr pain is there 24/7 in the background and flares up whenever it feels like it, the pain is totally different than other pain, have you in the past few months lifted something heavy, or reached down for something and hurt your back, first of all you could try something simple, a beechams powder at night before you go to bed, and one in the daytime if you need it, provided you do not have a stomach ulcer, or stomach problems, or are allergic to asprin, then you cannot take beechams, but otherwise give it a try, lets know how you get on , regards gerry
 
 
Gerry Says:
Apr 10, 2008 @ 2:00 am
 
 
Hi Betty,

Glad to see you are pain and stiffness free at the moment, even a day, week, month, is a bonus for us, and if prednisone works for you then you have no choice but to be on it rather than suffer this hidious pain, which is unbearable, got good points with your last comments re: vitamins etc., but think we are all in the same boat trying to find something to get rid of this thing that is mucking up our daily lives,as for me well l have had the cabbage water for a week and feel slightly clearer in the system, but will not speak too soon , just keep on trying things to see what works, nice talking to you betty, take care gerry
 
 
Betty Says:
Apr 09, 2008 @ 1:54 pm
 
 
From my own experience e.wakefield and from a GP, Neurologist and Rheumatologist, Simvastatin is notorious for causing muscle problems...cheers...Betty
 
 
Betty Says:
Apr 09, 2008 @ 1:52 pm
 
 
Hello Monnie....maybe run the idea by his doc for 5mg morning and 5mg nightly rather than 10mg once daily. I found I needed the night one as well as the morning as just 1 in the morning was running out about 4-6 hrs before the next morning one was taken. I am on 5mg strength - 1morning, 1 night and for me it works perfectly. Cheers..Betty
 
 
Betty Says:
Apr 09, 2008 @ 1:38 pm
 
 
back again Betty....I am on 2x5mg daily at the moment. The relief far outweigh the few downsides. AT the present time my schedule is to taper down slowly for 6 months. If I get through that symptom free then I may be home and hosed but am not counting all my chickens as I dont have a lot of luck with things...lol. Dont worry about the diabetes so much Betty...getting rid of PR is at the top of the list. Good luck...Cheers..Betty
 
 
Betty Says:
Apr 09, 2008 @ 1:35 pm
 
 
Hello Betty...I am diabetic and with strict diet control, I have not had a problem so far. Only been on Pred. for about 4 weeks now. Had a bit of trouble with sugar with higher doses but I got over it. Just eat a strict low GI diet, some low impact exercise and hopefully you will not end up diabetic. Diabetes is not the end of the world if you are vigilant with your diet and exercise. At the moment I can do my 30 mins. steady on ex. bike with no drama and I eat low GI and am never tempted to eat anything I shouldnt. Too many downsides to diabetes to get lax. Mind you some of the downsides are out of your control but at least people can try to prevent them...cheers...Betty
 
 
Betty Says:
Apr 09, 2008 @ 1:32 pm
 
 
Dont know if anyone answered you Ron B. It can be caused by a few things...all speculation as no actual proof....viruses, statin drugs, immune system loses the plot, sheer bad luck. In my case probably a combination of the lot. So far in my case Prednisone has helped 100%. I know it comes with downsides but I got desperate and was prepared to run the gauntlet. Keeping stress out of your life is a big help too...relaxes the muscles. A little bit of stretching of the muscles affected. Hope it comes good...cheers..Betty
 
 
Betty Says:
Apr 09, 2008 @ 1:27 pm
 
 
jools....also I am diabetic so have to be very strict with my diet....low GI. So far so good. I am on 5mg morning and 5mg night Pred. at the moment for 4 weeks then it drops back to 1mg tabs so the dosage can be lessened gradually. It drops back by 1mg daily in 2 weekly increments.....6 months in total. If things are going fine during the 6 months Im on track....most people seem to be on it 1-2 yrs. I am 60. Sugar levels so far are good. I see another rheumatologist next week so will pick his brains. Cheers..Betty
 
 
Betty Says:
Apr 09, 2008 @ 1:25 pm
 
 
Hello jools....I will check out Devils Claw...I was taking multi vits. with Prednisone but decided one was fighting against the other. I take a product here called Caltrate (calcium)...1 tab daily & I also drink 4-5 cups of milk daily. The doc said this should prevent osteoprosis. Also another side affect is thinning of the muscles but once again this will take up when the Pred. is finished. Low impact exercise helps the muscles and could prevent the prob. I will do another post jools as this thing chops things off...Betty
 
 
Betty Says:
Apr 09, 2008 @ 1:21 pm
 
 
Hello Mike..have you had your back checked out? Admittedly PR can get into your back muscles. From what I understand and from my own experience this thing is mainly in shoulders, neck, hips (tops of your legs) and butt cheeks. I have it radiating down both arms into my wrists and hands and one elbow. Mind you I had carpal tunnel in both hands and had them operated on in Dec 07 and Feb 08. It affected 2 fingers in my rt. hand and also my left knee. I have a dodgy right knee but believe it isnt affected. I hope you dont have PR. Cheers...Betty
 
 
mike Says:
Apr 08, 2008 @ 4:05 pm
 
 
i have had these back pains for several wks now and they are not gettting any better when i try to rise up from a seat with my arms on the chair i suffer terrible pains in my back i sure wish itis not pmr
 
 
Betty Says:
Apr 08, 2008 @ 2:05 pm
 
 
Hello Joyce...I wish there was another sure fire way but I dont know of one at the moment. I think the bottom line here is inflammation so something natural that counteracts it would be perfect. I guess the inflammation levels vary with the individual. It needs to be something too I think that doesnt build up the immune system cause I believe its an out of control immune system that is the bottom line of the cause. It needs to have the lid put on it to a certain extent to get it back on track again. Cheers...Betty
 
 
Betty Says:
Apr 07, 2008 @ 3:29 pm
 
 
Great to see you back Gerry. So far Pred. seems to be the only thing that will definitely work..for me anyway. Was on lots of vitamins from Naturopath to build up my immune system but that was defeating the whole purpose of this complaint. Initially the immune system loses the plot and has to be calmed down...vitamins are designed to build it up therefore one was fighting against the other so have stopped vitamins. I can deal with flu etc but not this thing fully blown. I see another rheumatologist next week so will see if I can find out more. Take care...cheers..Betty
 
 
Betty Says:
Apr 07, 2008 @ 3:26 pm
 
 
Hello Ann...I went back to the Doc yesterday and was told I have to stay on Pred. for 6 months initially....tapering the dose of course. I found that 5mg morning and 5mg at night was keeping symptoms out of sight and that is the aim of the exercise. I am diabetic so am very vigilant with what I eat and so far Im doing a good job. Only other probs. with Pred. is thinning of bones...calcium each day to counteract that....they will rebuild themselves once the Pred. is finished. Thinning of muscles....exercise bike will keep that at bay. The trick with exercise is to only do as much each day that wont produce the pain again. Drink lots of water to keep system flushed...cheers...Betty
 
 
gerry Says:
Apr 07, 2008 @ 9:21 am
 
 
Glad to see we are getting more and more people joining our little group of pmr sufferers, that way we just might be able to find something between us that actually helps and is not a chemical drug such as prednisolone, yes l know that a few of us find it helpful in releiving our stiffness and pain, and l do not blame anyone for going down that road, the pain is bad enough as Betty says to jump in front of a train, and this pain is about the worse there is, so what ever helps each and everyone of us is okay, but lets try and find an alternative that is natural, take care everyone, gerry
 
 
jools Says:
Apr 06, 2008 @ 3:27 pm
 
 
I have found Devil's Claw very helpful for the pain. I checked and it is OK to take it with the steroids. If you are taking steroids you should also be taking a special weekly tablets to prevent Osteoporosis. I think someone said they stopped taking the steriods for a few days or something..... I understand it is dangerous to just stop taking them. You have to reduce them gradually. I carry a steriod card just in case. The pharmacy can provide you with one if you ask.
 
 
joyce powell Says:
Apr 04, 2008 @ 5:30 am
 
 
it was so good to read of other people coping with polymyalgia.I share everyones concerns re prednisolone and wish we could find some other way of dealing with the pain.
 
 
Betty Says:
Apr 03, 2008 @ 4:14 pm
 
 
Ann..when this thing ramped up about a month ago, 2 paracetomol in the morning would give me 12 hrs relief and mobility...as soon as the pain was under control. Then it became slowly worse so upped the frequency of paracet. Then I started 1 celebrex a day along with the paracet. until I reached the point where that didnt work. I believe predn. is the only line of attack but I will know more after I see the Rheum. in 2 weeks. They know of more drugs available than general practitioners. I will be in touch...cheers...Betty
 
 
Betty Says:
Apr 03, 2008 @ 4:10 pm
 
 
Hello Ann..continuing...it can have a life span of 1-5 yrs...some people never get rid of it. The orth. surg. thinks I have had it for a few years now but very very mild. Ended up with carpal tunnel in both hands and he said in hindsight PM was more than likely the cause. Could have also been the cause of diabetes. Was diagnosed 4 yrs ago with it. It can come in spikes too evidently. It reacts in cold weather Im led to believe which is understandable. Cheers...Betty
 
 
Betty Says:
Apr 03, 2008 @ 4:07 pm
 
 
Hello Ann...I was next door to useless too but I have my life back...not completely pain free but 90% better than what I was. 5mg at night and 5mg morning has been great. After today I am down to 5mg in the morning for 3 days and then stop. Spoke to an orthopaedic surgeon friend yesterday and he said if I could stay off it for just 2 weeks it will be a big help towards long term after effects of prednisone. See another rheumatologist in 2 weeks.
 
 
june Says:
Apr 03, 2008 @ 11:49 am
 
 
Hi to you all
I just came across your page after searching for info on PMR, its good to know that you can talk to some one that understands what its like to have this nasty illness.
thank you
june
 
 
ann clarke Says:
Apr 03, 2008 @ 6:08 am
 
 
Hello Betty thank you for replying I am on prednisone and have been for about two months now started on 20mg and am now on 10mg which I have been on for one week and will be going back to docs next week to see how I am getting on. I am begining to get pains again on this level though I was hoping that I would be able to drop the dosage down to a smaller level. I am a lot better than I was I could't even dress myself a month ago so I suppose I can't complain but being new to this disease I was hoping that I would get some advise on help to combate this. I thought I would feel so much better on the treatment but i am still exhausted after a day at work and as I am the only worker in the household I can't give up work until I get over this. any way enough of me moaning. thank you agian for replying. Ann
 
 
Betty Says:
Apr 02, 2008 @ 6:53 am
 
 
I have been on them for about 2 weeks now and about 6 days to go and the doc says I have to come off them...the pain and stiffness will just be back in full force so dont know where Im to go from there. See another rheumatologist in 2 weeks to see if theres something that will replace the Prednisone but I understand it is the only treatment. I am feeling like Im between a rock and a hard place now. It would be easier to step in front of a fast moving train than go through all the pain I was in before.
 
 
Betty Says:
Apr 02, 2008 @ 6:51 am
 
 
Hello Ann...I find that walking any distance in 1 go makes me worse. I am on Prednisone at the moment...am diabetic..so its a battle with sugar levels because of the Pred. Havnt had night sweats since Ive been on the Pred. I am on 5mg morning and 5mg night at the moment..tonight being the 1st night on it as I wake up stiff and in pain as it has affected nearly all my muscles. I am to go off it in 6 days time but can so nothing else but this thing coming back in full force again.
 
 
ann clarke Says:
Apr 02, 2008 @ 6:36 am
 
 
Hi I am 49 and have been diagnosed with polymyalgia for about two months now my doctor started me on steriods at 20mg and now he has brought me down to 10mg and I am seeing him next week to see how things are. I must admit one of the worst things for me is the night sweats apart from the muscle pain. I wake up in a puddle. do you have anything that you know of that will help the night sweats. I wanted to start some exercise as I need to lose weight and a lot of it but I am to tired at the moment . It is a struggle to keep going to work as well by the weekend i am exhausted. Any ideas would be more than welcome.
 
 
Sue Says:
Apr 02, 2008 @ 3:36 am
 
 
Hi to all,
I started with PMR last year wondered what had hit me. Exercised everyday till then although it was getting harder every day to do it, till i had to go to the doctors. She was very good only took a couple of weeks to find out what it was. Had to go on very high steriods to start with 30-mg. Now down to 6mg. But have started with all the muscle pain again not as bad as before. So tired all the while do not want to do anything ie go out anywhere which is very not me.
Although i would not wish this on my worst enermy i am glad that i am not alone thought i was a hydro, complaining all the time. The Dr has said i have to stay on the steriods for 2 years. Then hopefully next march i will be okay. ??
 
 
Betty Says:
Mar 30, 2008 @ 4:05 pm
 
 
it sure is a relief Pat. I am down to 10mg daily and wake up a bit stiff and sore but 3 hrs after I take my tabs. Im good until the next morning. I may need the dose adjusted as each time it drops 1 tab after each 3 days Im a little stiffer and sorer. You wouldnt wish this thing on your worst enemy. I was put on 25mg a day for 3 days to start with and within 2 hrs...no pain and loose as...lol. Its better than winning the lottery.
 
 
pat Says:
Mar 29, 2008 @ 1:09 am
 
 
hace been on varying doses of steroids for years as am asthmatic also C>O>P>D as soon as i stop taking steroids its as if i sieze up. chronic pain unable to lift my arms fever at night and generaly feel like shit!!! saw my chest Dr last week on a very bad day could hrdly walk from pain, was off steroids,he reccomended that I go on 10 ml daily and phone him after 24 hours.immediate relief!!!! he diagnosed polymyalgia.bless him. will also try primrose oil.its great to know that there are others out ther to share ones woes with.have already have Osteoperosis from continual use of steriods. but what is the odd fracture compared to the pain relief!!!!!!regards to all fellow sufferers Pat PS. cant handle the cold and wet,summer when we get one is bliss. when I win the lottery shall move to warmer climes!!!!
 
 
Betty Says:
Mar 28, 2008 @ 5:02 pm
 
 
that would be great Gerry thanks. Been raining here too..lol. Cold weather is about to start here I think...early this year. Its not going to do us much good but thats life hey. I hate coats so looks like I have to overcome that aspect too..lol. Started on my stuff from the naturopath again so hopefully it will kick in in a month or so. Going to see a Bowen Therapist soon to see what they can offer. Will talk later....take care...cheers....Betty
 
 
gerry Says:
Mar 28, 2008 @ 9:29 am
 
 
Hi Betty

got your e-mail dated mar 26 2.11pm, l am not certain what part of my e-mail you received so monday l will redo it and send it to you okay.

weather here is cats and dogs, in other words it is raining, raining, raining, which really makes the pain worse, thought as you were in Australia the warmer climate would have been better, as l am thinking of going to Spain for six months a year to avoid the cold weather.

anyway have a good weekend and speak to you soon, gerry
 
 
Betty Says:
Mar 26, 2008 @ 2:11 pm
 
 
Hello Gerry...I will answer this when I come home. This site seems to chop off the emails at a certain point....half my first one was missing and looks like the same as your last one. Any idea what the rest of it was? Or..how do I see the rest of your reply? Thanks Gerry...
will talk to you in a day or two...take care...Cheers..Betty..my email addie: ausbettsee47@gmail.com
 
 
gerry Says:
Mar 26, 2008 @ 4:05 am
 
 
Dear Betty,

Got your e-mail, Australia wow!!!
thought you may be local, or for some reason or another scotland came to mind?? - My dad was in the New Zealand and Australian Army during the war, he was out there doing walkabout when war broke out and so he joined up, l have a photo of him with two females, one under each arm, at Christchurch train station, and he is smiling, had a lovely smile, and really good teeth, luckily l take after him with my teeth, and at 61 years old still have most of them, he was given a plot of land for being in the army and it is in a place called Fern Tree Gully, well enough about that.

Really glad about you pain going, really glad for you betty, and loose, the stiffness is awful isnt it, the Celebrex had some really bad side effects listed in my mimms book, so l avoided taking them, along with about ten other packets of tablets l was given to try by my doctor, my mum was on Prednisone for years, so l avoided taking them as well, actually l really d...
 
 
Betty Says:
Mar 22, 2008 @ 3:10 pm
 
 
Hello Gerry...Im in Australia and Happy Easter to you and yours too. Went back to the doc on Thurs and he confirmed PM...Im on Prednisone for the next 21 days and the difference in 2 hrs was remarkable...the pain and stiffness just got overbearing. I stopped Plaquanil and Celebrex to take Prednisone. I reacted to it once before so it was a bit scarey for a night or two but no reaction this time except pain free and loose as....its better than winning gold lotto...lol. Cheers...Betty
 
 
gerry Says:
Mar 22, 2008 @ 10:07 am
 
 
Hi Betty, Plaquanil was not in my mimms medicine book, so glad you told me what it is, yes quinine, is a muscle relaxant, so hope it works out for you, l did try sweepes tonic water for the same reason the quinine, but guess the dosage was rather small, your doctor sounds okay, l have taken details of the web site you gave me and will have a look at it in the week thanks, actually you gave me some hope when you said it takes between 3-6 months to work its way out of your system, and l have had it since october/november 2007, like you l only took zoton a few times, guess we are not the run of the mill whom pop everything and anything and get away with it, let me know how you get on with the Plaquanil, and good luck with them, happy easter, weather in ramsgate is cold, damp, windy, but sunny, are you local or do you live elsewhere? speak to you soon regards gerry
 
 
Betty Says:
Mar 19, 2008 @ 12:34 pm
 
 
G'day Gerry...Plaquanil is supposedly quinine. The Rheumo said it would "settle down" my immune system whatever that means. Anyway Ive decided to give it a spin for now. I got onto some site last night about statins and muscle probs and they say that even stopping the drug doesnt stop the muscle probs from worsening and aint that the truth. I only took the rubbish for 3 weeks and Im in enough strife. This is the link:http://www.spacedoc.net/ polymyalgia_rheumati
ca.html
Scarey reading....Cheers...Betty...Havnt tried evening primrose oil but will make a note of it thanks Gerry.
 
 
gerry Says:
Mar 19, 2008 @ 3:26 am
 
 
HI Betty, thanks for responding to my comments, l was begining to feel that l was the only one out here, what a life, up to october last year l was fine, then some chinese garlic upset my stomach and then doctor gave me the zoton (LANSOPRAZOLE) fastabs, which l took for about six-seven days and awoke up to real pain in both arms and shoulders, could not get out of bed, the pain was excruciating, and lasted 24/7 , for four months, the only pills l took were a couple of times beechams, and paracetamol, as l really do not like pills, some days are worse that others, but l feel stress makes it worse, looking forward to the warm weather in the hopes that makes it a bit better, what are the PIAGUANIL tablets? And glad you are trying vitamins, have you tried evening primrose oil?? l am going to this week, keep in touch, nice chatting with you, gerry
 
 
Betty Says:
Mar 17, 2008 @ 8:11 pm
 
 
Hello Gerry..from what I can understand our immune system is run down and gets confused and starts attacking our weak spots. I have started taking Plaquanil yesterday, which the Rheumo gave me, as I am getting nowhere without it so what have I to lose. Its designed to calm down the immune system. I just dont understand the whole process.
Cheers....Betty
 
 
Betty Says:
Mar 17, 2008 @ 6:14 pm
 
 
I really hope your cabbage diet works out for you Gerry. I have just started on a nutrition programme....lots of high vol. vitamins etc. so hope it works. I think that this thing has to run its course. You have bad days and not so bad days with it. Drug companies have a lot to answer for I feel. One doctor told me that it will take 3-6 months to get the effects of Simvastation out of my system. Regards...Betty
 
 
gerry Says:
Mar 17, 2008 @ 9:34 am
 
 
looks like l send more comments than anyone else, still it gives you all something to read, and maybe reply to, hopefully, right how many of us trust our own bodies, l do, and if my immune system is attacking , then there is a reason for it to do so, and if the medical proffession believes our immune system is attacking our own bodies then why give us drugs that boost our immune system such as steriods, which seem to work, and if that is the case then our bodies are right in the first place, but, cannot cope on their own, and need a boost, so maybe the virus or whatever it is, is stronger than our immune system, l feel that my body knows what it is doing, and l trust it, now all l need to do is take good care of it and give it the right natural help it needs, whats your views, let me know, thanks
 
 
gerry Says:
Mar 17, 2008 @ 9:25 am
 
 
Dear Betty, read your comment on pr and about the drugs you were taking, l developed really excruciating pain in both arms and shoulders after taking zoton fastabs for stomach acid, l never had any problems prior to taking these, l am sure a lot of these pills we are prescribed cause problems, as with your diabex and simvastatin, l have heard of other cases where simvastatin has cause problems, l think it is really awful that the drug companies can do this to us, l also have problems taking any kind of prescribed drugs due to side effects, and allergies, so what do we do, as you can read l am starting on a cabbage diet, but because you are diabetic you have to eat, but maybe we can come up with some other natural cure, or help, keep in touch okay, regards gerry
 
 
everyone Says:
Mar 17, 2008 @ 9:14 am
 
 
hallo everyone, well it is monday the 17th of march, and the pain has got the worse of me, so l started on the cabbage diet this morning, was really hungry so not only did l have cabbage water l had cabbage as well, it is not bad, but l do love my food so it is difficult, but, after the pain l have been suffring l am willing to try anything natural, will keep you all up to date on the progress, gerry
 
 
Betty Says:
Mar 15, 2008 @ 3:20 am
 
 
I have been diagnosed with a 'rheumatoid' problem but I stake my life on it being PR...the symptoms fit it exactly. Although my blood tests were normal doesnt mean it isnt PR as the tests can be normal in some cases. I was on Diabex for diabetes and with that came mild muscle aches and pains. Then after 2 months of that I was put on Simvastatin for lowering cholesterol. Within 3 days I had bigger muscle problems...shoulders, neck and hips. All I take is paracetomol and celebrex...I am allergic to a lot of drugs. This is relieving symptoms a little but as soon as I do some exercise like mow the yard or vacuum the house I am in strife. Takes about 6 days to get a bit better but not back to the point I was before I did the exercise. Ever few days or so I experience low grade fevers late in the afternoon and early night..this may last 2 or 3 days at a time. The condition is worsened by laying down and sitting down...I mean you have to rest some time in 24 hrs. I have disturbed sleep, lost ...
 
 
gerry Says:
Mar 14, 2008 @ 2:00 pm
 
 
Hallo everyone l have been avoiding sending any messages as l failed at starting my cabbage water diet, the weather was rather cold, and my weakness is food, hence l did not start the cabbage water two day diet, but scoffed myself with all sorts of goodies, but l am really going to try to start my diet on monday, after a weekend of nice food, then it is two days of cabbage water, followed by two days of bottled water, please do not go on this diet yourselves if you are diabetic, or have stomach problems, and always check with your doctor first okay, well its hungarian goulash tonight, home made, speak to you all soon.
 
 
gerry Says:
Mar 14, 2008 @ 1:54 pm
 
 
dear jeanette l really do feel for you it must be awful not getting help when you really do need it and your symtoms sound really intolerable l do not know what to say to you except l can symathize with you having been in really bad pain myself and not knowing what was wrong or who to ask for real help and not be fobbed off with some pills which l am totally against unless it is an emergency then we have no choice l will keep in touch if you email this site again maybe someone out here to talk to will help a little, thank goodness for this website where we can help each other, take care.
 
 
Carole Says:
Mar 13, 2008 @ 7:18 pm
 
 
I have PMR and have been treating it with prednizone. I started with 25 mgs and worked my way down to 3 mg and it came back on me but not as ssevere as the first time. I went back on ten mgs. and am now taking one a day hoping this will soon allow me to go off completely. My specialists said I should expect a year at low dosages
 
 
jeanette Says:
Mar 11, 2008 @ 11:17 am
 
 
after being ill off and on for 3 months, I finally went to emerg.room with a severe headache,stomach pain, and feeling like ive been hit by a mac truck, I suspected pmr, as I had it 15 yrs ago, treatment was prednizone, after effects fibromyalgia,, oteo arthritis, and have to use a cane, for stability, i n pain most of the time. got home from hosp, yesterday, I had to tell drs, I had pmr, and to check seds rate, and it was very high. but no wone would help me, for the last 3mo. doctered -till i got sick of going -and wasting our s.. money which is our only income. now I can get up and out of chair by myself. stand for 10 min with out the feeling of sit down or fall down. pain the stomach and a headache so severe I could NOT tolerate, bright light - sun and extreme irritability.- joint pain, Sick one day and well the next for 3 mo. is torture.My prayers are with all of you suffering from pmr.god bless
 
 
gerry Says:
Mar 06, 2008 @ 6:26 am
 
 
Dear Gail read your note about pmr and l can sympathises with you, l can see you have tried a few things with no success, but do keep trying, l am sure that somewhere there is some kind of treatment drug free that can help but we have to keep on searching so then we can help each other with pmr and l agree it is an insisious disease but through it we can learn so hang in there okay sincerely gerry
 
 
gerry Says:
Mar 06, 2008 @ 6:19 am
 
 
l have pain 24/7 it disturbs my sleep disturbs my everyday lifestyle and it is making me depressed whereas l was never a depressed type of person the pain on a scale of 1-10 sometimes reaches 12 l do not like pills of any kind always have trouble with allergies when l have taken any therefore l am now going to try natural remedies starting with an old fashion one cabbage water which my father always said purifies the blood so here goes two whole days on nothing but cabbage water l will let you know the results in the week gerry
 
 
gerry Says:
Mar 06, 2008 @ 6:08 am
 
 
Dear julie read your note about your dad and l also think he needs another opinion so my advice is stand back from the situation and go to your doctor tell him you are not happy about your fathers pmr and ask for another opinion maybe by a neruologiest (my spelling is a bit up the creek sorry) you only have one dad and he needs your help so it is up to you to check it out for him good luck gerry
 
 
gerry ramsgate Says:
Mar 05, 2008 @ 3:48 am
 
 
l was prescribed zoton fasttabs for a digestive upset after taking them for about seven days l awoke to find both my arms in agony and my shoulders and l was unable to get myself out of bed went to the doctors who said l had pmr funny how l never had it prior to taking the zoton tablets and my arms and shoulders were always strong due to the fact that l always rowed boats l feel that the zoton caused this problems any one else had the same - replies please
 
 
gerry Says:
Mar 05, 2008 @ 3:39 am
 
 
Dear e from wakefield in reply to your note on pmr l would like to know more about what you were taking as l am in the same boat as you and am sure that the tablets kick started my pmr off or even caused it as l had no problems prior to the tablets and l would like to know if you are interested in trying to cure yourself rather than take pills l do not want to take pills if l do not have to and maybe find an alternative cure what do you think let me have your views thanks gerry
 
 
Betty McNeill Says:
Feb 29, 2008 @ 1:19 pm
 
 
I am taking 10 Mgs of predisone a day....my family Dr. says it could cause diabetes. What is your opinion?
 
 
Betty McNeill Says:
Feb 29, 2008 @ 8:54 am
 
 
I have had polymyalgia Rheumatica for over a year and thought I was about over it, being down to l/2 tablet a day, but it now has come back big time and am taking 2 tables (5 Mg ea) a day, but am not happy taking this much as my Dr. tells me it could cause Diabetes.
 
 
Gail Genner Says:
Feb 25, 2008 @ 7:36 pm
 
 
Out of the blue I was crippled with Pain in my shoulder's and groin area . I was diagnosed with PMR I have been on prednisone noe for 12 months. Recently I stopped but have had to go back on it as pain and mild fevers returned. I am exhausted trying to find a cure. Herbs, acupuncture and massive vitamins have not stopped this insisious disease. Can anyone tell me if it is a virus or what. Initially I also had massive doses pf antibiotics as well. I feel drained tired and depressed as well as fevers and pain. Every day is a struggle. Can any one help with some positive advice. sincerely Gail
 
 
e.wakefield Says:
Feb 22, 2008 @ 1:18 pm
 
 
I had a heart attack,2yrs ago, I am 70yrs..THe doctors put me on simvastatin 40gm daily,for colestorel. 6 months ago I started to get stiffness in my hips shoulders.I was put on 10mgprednisolone....I am now on 5 mg prednisolne.I think that maybe the Simvatin tablets may have kicked off my..pocymyalgia,which could effect muscules....what do you think.
 
 
Monnie Says:
Feb 12, 2008 @ 1:35 pm
 
 
My husband is 79 and has been diagnosed with PMR for the past two years and he is on Prednasone 10 mg. once a day. His shoulder is very painful. he has broken both hips and can hardly walk. He takes a blood test once a month and his vision is bad. He can hardly keep his eyes open and is in Water Arobics now for his hip, etc. Help!
 
 
Julie Says:
Jan 23, 2008 @ 6:28 pm
 
 
My dad is 83 and will be tested for PMR next week. He says he just doesn't feel right, complains of "heaviness in my ears" and vision problems. Does this sound like PMR? He doesn't have the shoulder and hip pain I read about.
 
 
Ron Graham Says:
Jan 23, 2008 @ 2:53 am
 
 
I am 82 years old I developed PMR in
2007. My GP keeps giving me prednisalone but it only relieves the pain for 10 to12 hours.I have to have a blood test every month but I never feel 100%
any more ,What would you recomend?
 
 
Ron Beaman Says:
Jan 15, 2008 @ 3:50 pm
 
 
My father is ninety-one years old who is suffering from PMR. He is own prednizone and ambien to help him. I need to know why it happen and/or what ican do to help him.